What the Hell Happened to My Brain?
304 pages, 5 1/2 x 8 1/2
Release Date:21 Jan 2016

What the Hell Happened to My Brain?

Jessica Kingsley Publishers
Kate Swaffer was just 49 years old when she was diagnosed with a form of younger onset dementia. In this book, she offers an all-too-rare first-hand insight into that experience, sounding a clarion call for change in how we ensure a better quality of life for people with dementia. Kate describes vividly her experiences of living with dementia, exploring the effects of memory difficulties, loss of independence, leaving long-term employment, the impact on her teenage sons, and the enormous impact of the dementia diagnosis on her sense of self. Never shying away from difficult issues, she tackles head-on stigma, inadequacies in care and support, and the media's role in perpetuating myths about dementia, suggesting ways in which we can include and empower people with the diagnosis. She also reflects on the ways in which her writing and dementia advocacy work have taken her on a process of self-discovery and enabled her to develop a new and meaningful personal identity.
RELATED TOPICS: Health & Well-Being
Kate Swaffer commenced her professional career as a nurse specialising in dementia and aged care. She now works as an advocate and activist for dementia and aged care, has published many articles and a book of poetry, and has presented nationally and internationally on dementia. She is a co-founder and co-chair of Dementia Alliance International, chair of Alzheimer's Australia Dementia Advisory Committee and a co-chair of the Consumers Dementia Research Network. She blogs at www.kateswaffer.com.
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