A World without Martha
A Memoir of Sisters, Disability, and Difference
Victoria Freeman was only four when her parents followed the standard medical advice of the day and sent her sister away to a distant, overcrowded institution. Martha was not yet two, but in 1960s Ontario there was little community acceptance or support for raising children with Down Syndrome at home. Except for occasional, painful visits, Victoria and Martha grew up in separate worlds, yet Martha’s absence marked every aspect of Victoria’s life.
In this frank and moving memoir, Victoria describes growing up in a world that excluded and dehumanized her sister. She writes too of her own lifelong journey to understand the policies and assumptions about disability that profoundly harmed Martha, her family, and herself. Despite society’s long insistence that that only a “normal” life was worth living, changing attitudes to both disability and difference would eventually offer both sisters new possibilities for healing and self-discovery.
A World Without Martha is a searing account of the collateral damage of institutionalization on families, and especially siblings. It is also a story of love and loyalty – of the family ties, both traumatic and loving, conscious and unconscious – that bind us to one another over the course of a lifetime.
From social workers and activists to disability studies scholars and family members, this book is a must-read for anyone who wants to understand the impacts of exclusion and institutionalization on people with intellectual disabilities and their families.
This is a raw, honest, and candid account of how institutional and ideological ableism – institutionalization and the separation of siblings as well as stigmatization, shame, and marginalization – impacts individuals, families, and their relationships in tragic, shattering, and unpredictable ways.
Most memoirs written about people born with Down Syndrome have been authored by family members, often in a reassuring manner intended to destigmatize the condition for the general public. The tone of this book is strikingly different. It is full of regret, ambivalence, and conflict. There is no denying the honesty embedded in the author's raw, unvarnished reflections of her family's missed opportunities of acceptance and reconciliation.
Victoria Freeman is a writer, theatre artist, educator, and public historian. She is the co-creator, with Sol Express, of Birds Make Me Think About Freedom, a play about the experiences of peoples institutionalized for intellectual disability, and is on the advisory board of Uncovering the People’s History, which documents the stories of institutional survivors and their families for Family Alliance Ontario. She also co-wrote the Talking Treaties Spectacle with Ange Loft of Jumblies Theatre, which was performed in 2017 and 2018 at Fort York in Toronto. Her previous book, Distant Relations: How My Ancestors Colonized North America, was shortlisted for the 2000 Writers’ Trust Shaughnessy Cohen Prize for Political Writing. She teaches in the Canadian Studies Program at Glendon College, York University, in Toronto.
Receive the latest UBC Press news, including events, catalogues, and announcements.Subscribe to our newsletter now
Read past newsletters