Dementia, Culture and Ethnicity
Release Date:21 Apr 2015
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Dementia, Culture and Ethnicity

Issues for All

Jessica Kingsley Publishers

With contributions from experienced dementia practitioners and care researchers, this book examines the impact of culture and ethnicity on the experience of dementia and on the provision of support and services, both in general terms and in relation to specific minority ethnic communities.

Drawing together evidence-based research and expert practitioners' experiences, this book highlights the ways that dementia care services will need to develop in order to ensure that provision is culturally appropriate for an increasingly diverse older population. The book examines cultural issues in terms of assessment and engagement with people with dementia, challenges for care homes, and issues for supporting families from diverse ethnic backgrounds in relation to planning end of life care and bereavement. First-hand accounts of living with dementia from a range of cultural and ethnic backgrounds give unique perspectives into different attitudes to dementia and dementia care. The contributors also examine recent policy and strategy on dementia care and the implications for working with culture and ethnicity.

This comprehensive and timely book is essential reading for dementia care practitioners, researchers and policy makers.

RELATED TOPICS: Aging, Sociology
This book is extremely timely and is a welcome contribution to our understanding and thinking about how to support people with dementia and their families from an increasingly diverse background. Within the different chapters it skilfully combines a range of important issues and useful information as well as including powerful stories and perspectives of families affected by dementia. Definitely one for the bookshelf for both those supporting families affected by dementia as well as policy, decision makers. – Rachel Thompson, Professional & Practice Development Lead for Admiral Nursing, Dementia UK
This is a book which is absolutely essential to anyone interested in people living with dementia and their care. It is rare to find a text that addresses the complexity of culture and ethnicity in such a person centred way, and unravels for us the implications for how we provide services and make care available to people of all backgrounds. – Charlotte L. Clarke, Professor of Health in Social Science, University of Edinburgh
[This book] deals with culture and ethnicity to further our understanding of the individual experience of dementia and how that impacts on the person, their carers and their families. It is so rewarding and illuminating to drill down to tap the huge resource of personal experience and how extraneous factors can influence the expression and experience of dementia. Each chapter is a standalone treatise on important aspects of dementia. Understanding the effects of our culture, ethnic background, but most importantly the combination of these will further our depth of understanding and empathy that we all know is the cornerstone of good person centred care. In this way we can strive to improve the lived experience of dementia. The editors and contributors are to be congratulated on bringing to life this hitherto relatively neglected but incredibly important aspect of dementia. – From the foreword by Alistair Burns CBE, Professor of Old Age Psychiatry, University of Manchester

Julia Botsford currently holds a joint post as Research Lead at Dementia UK and as Senior Admiral Nurse at Barnet, Enfield and Haringey Mental Health NHS Trust. After a degree in history and philosophy, Julia trained as a general and mental health nurse. Early on in her career she made a decision to work within dementia care. Since then she has held a number of different posts both in clinical practice and education. She completed a doctorate in 2010, through research on the experiences of Greek Cypriot and African Caribbean partners of people with dementia.

Karen Harrison Dening is Director of Admiral Nursing at Dementia UK. Her key interests are palliative care and end of life care in dementia, advance care planning and specialist and advanced nurse practice. She has recently studied for a part-time doctorate at University College London in the Marie Curie Palliative Research Unit researching advance care planning in dementia. Karen is a member of the NCPC Dementia Working Group and the RSM Palliative Care Council.

1. Introduction. Julia Botsford, Research Lead, Dementia UK and Senior Admiral Nurse, Barnet, Enfield and Haringey Mental Health NHS Trust. Section One: Exploring the Issues. 2. Dementia and Ethnic Diversity: Numbers and Trends. Omar Khan, Director, Runnymede Trust. 3. Meanings, Identities and Health. Julia Botsford. 4. Dementia and Ethnicity: Implications for Diagnosis and Medical Care. Professor Ajit Shah, University of Central Lancashire and Dr Sofia Zarate Escudero, Central North West NHS Foundation Trust. 5. Accessing Support and Services. Jo Moriarty, Research Fellow, Social Care Workforce Research Unit, King's College London. Section Two: Engaging and Working with People with Dementia and their Families. 6. Dementia and Care Giving in South Asian Communities in the UK. Dr Karan Jutlla, Senior Lecturer, Association for Dementia Studies, University of Worcester. 7. Assessment and Engagement. Vincent Goodorally, Admiral Nurse. 8. Communication and Working with Interpreters: Cultural Competence in Dementia Research and Practice. Julia Botsford. 9. Working Positively with Culture, Ethnicity and Dementia. Julia Botsford and Karen Harrison Dening, Director of Admiral Nursing, Dementia UK. 10. Dementia, Ethnicity and Care Homes. Dr Alisoun Milne, Professor of Social Gerontology and Social Work, University of Kent and Dr Jan Smith, Research and Development Fellow, Dementia Innovation Hub Canterbury Christ Church University. 11. End of Life, Dementia and Black and Minority Ethnic Groups. Karen Harrison Dening. Section Three: Perspectives of Families Living with Dementia. 12. Telling it like it is: Personal Experiences of Ethnicity and Dementia. Joy Watkins, Development Lead and Shemain Wahab, Project Coordinator, Uniting Carers, Dementia UK. Section Four: The Way Forward. 13. Strategy and Policy. Jill Manthorpe, Professor of Social Work and Director of the Social Care Workforce Research Unit, King's College London. About the Editors. About the Authors. References. Index.
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