What the Hell Happened to My Brain?
304 pages, 5 1/2 x 8 1/2
Release Date:21 Jan 2016

What the Hell Happened to My Brain?

Jessica Kingsley Publishers
Kate Swaffer was just 49 years old when she was diagnosed with a form
of younger onset dementia. In this book, she offers an all-too-rare
first-hand insight into that experience, sounding a clarion call for
change in how we ensure a better quality of life for people with
dementia. Kate describes vividly her experiences of living with
dementia, exploring the effects of memory difficulties, loss of
independence, leaving long-term employment, the impact on her teenage
sons, and the enormous impact of the dementia diagnosis on her sense of
self. Never shying away from difficult issues, she tackles head-on
stigma, inadequacies in care and support, and the media's role in
perpetuating myths about dementia, suggesting ways in which we can
include and empower people with the diagnosis. She also reflects on the
ways in which her writing and dementia advocacy work have taken her on
a process of self-discovery and enabled her to develop a new and
meaningful personal identity.
RELATED TOPICS: Health & Well-Being
Kate Swaffer commenced her professional career as anurse specialising in dementia and aged care. She now works as anadvocate and activist for dementia and aged care, has published manyarticles and a book of poetry, and has presented nationally andinternationally on dementia. She is a co-founder and co-chair ofDementia Alliance International, chair of Alzheimer's AustraliaDementia Advisory Committee and a co-chair of the Consumers DementiaResearch Network. She blogs at www.kateswaffer.com.
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