232 pages, 6 x 9
Paperback
Release Date:15 Apr 2009
ISBN:9780813545448
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With Shaking Hands

Aging with Parkinson's Disease in America's Heartland

Rutgers University Press
Far from celebrity media spotlight, ordinary individuals, many older and less advantaged, suffer the disabling pain of Parkinson's disease (PD), an illness whose progressive symptoms often mimic old age and cause mobility impairment, communication barriers, and social isolation.

At the heart of With Shaking Hands is the account of elder Americans in rural Iowa who have been diagnosed with PD. With a focus on the impact of chronic illness on an aging population, Samantha Solimeo combines clear and accessible prose with qualitative and quantitative research to demonstrate how PD accelerates, mediates, and obscures patterns of aging. She explores how ideas of what to expect in older age influence and direct interpretations of one's body.

This sensitive and groundbreaking work unites theories of disease with modern conceptions of the body in biological and social terms. PD, like other chronic disorders, presents a special case of embodiment which challenge our thinking about how such diseases should be researched and how they are experienced.

This book is at once a scholarly discourse on an ethnographic study of a cohort of Iowans with Parkinson's disease, and a primer on medical anthropology, Parkinson's disease, and ethnographic research methodology. Recommended. Choice
A welcome addition to the literature, focusing on the experience of older adults who are living with this unpredictable, disabling and stigmatizing condition. The author writes crisply, and yet with compassion and sensitivity, as she offers her readers access into the world of ordinary people who often display extraordinary strength and dignity under traumatic life circumstances. Contemporary Sociology
The book has at its heart an ethnographic account of the experiences of eight adults in rural Iowa living with PD and their families, and also includes a primer on medical anthropology and one on PD itself. Solimeo writes well, and with affecting sympathy, about life with PD. Journal of Health Care for the Poor and Underserved
The future for medical anthropology must include the ethnography of the neurodegenerative conditions of aging. With Shaking Hands brings that future into the present with a strong description of the lived experience of elderly people with Parkinson's Disease in America. Arthur Kleinman, Harvard University
An important and excellent book that describes the experience of Parkinson's disease from the inside: how patients and their family members view it. Thus, it forms a singular contribution to the scientific literature on individual experience and disease. Robert L. Rubinstein, author of Singular Paths: Single Men Living Alone
A richly detailed and touching ethnographic portrayal of the experiences of elderly people with Parkinson's disease. It is pertinent reading for researchers and clinicians as well as students, especially but not exclusively those in medical anthropology. Judith C. Barker, University of California, San Francisco
This book is at once a scholarly discourse on an ethnographic study of a cohort of Iowans with Parkinson's disease, and a primer on medical anthropology, Parkinson's disease, and ethnographic research methodology. Recommended. Choice
A welcome addition to the literature, focusing on the experience of older adults who are living with this unpredictable, disabling and stigmatizing condition. The author writes crisply, and yet with compassion and sensitivity, as she offers her readers access into the world of ordinary people who often display extraordinary strength and dignity under traumatic life circumstances. Contemporary Sociology
The book has at its heart an ethnographic account of the experiences of eight adults in rural Iowa living with PD and their families, and also includes a primer on medical anthropology and one on PD itself. Solimeo writes well, and with affecting sympathy, about life with PD. Journal of Health Care for the Poor and Underserved
The future for medical anthropology must include the ethnography of the neurodegenerative conditions of aging. With Shaking Hands brings that future into the present with a strong description of the lived experience of elderly people with Parkinson's Disease in America. Arthur Kleinman, Harvard University
An important and excellent book that describes the experience of Parkinson's disease from the inside: how patients and their family members view it. Thus, it forms a singular contribution to the scientific literature on individual experience and disease. Robert L. Rubinstein, author of Singular Paths: Single Men Living Alone
A richly detailed and touching ethnographic portrayal of the experiences of elderly people with Parkinson's disease. It is pertinent reading for researchers and clinicians as well as students, especially but not exclusively those in medical anthropology. Judith C. Barker, University of California, San Francisco
Samantha Solimeo is a Health Research Science Specialist at the Center for Research in the Implementation of Innovative Strategies in Practice at the Iowa City VA Medical Center.
Acknowledgments
List of Abbreviations
Introduction: Becoming Old, Becoming Sick
Tell the Guys at the Coffee Shop That I'm Seeing My Anthropologist
It Takes a Little While to Find Out for Sure
It's a Nasty, Hiding Disease
I'm a Little Disappointed in That I Don't Know What to Blame It On
I Don't Know What's Worse-Parkinson's Disease or the Medications
It Gets Worse
I Am More of the Parent Than a Wife
Conclusion: Aging, Embodiment, and Conditions
Appendix A: Interview Participants
Appendix B: Parkinson's Disease Resources
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