Younger People with Dementia
Paperback
Release Date:01 Nov 1998
ISBN:9781853025884
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Younger People with Dementia

Planning, Practice and Development

Edited by Sylvia Cox and John Keady
Jessica Kingsley Publishers

Despite the growth of interest in dementia and dementia care over the past two decades, services and interventions for younger people with dementia and their carers remain, on the whole, fragmented and poorly developed. The focus of social, psychological and biomedical research has been almost exclusively on older people and their carers.

The first book to address the subject in its own right, Younger People with Dementia addresses good practice and stimulates an agenda for change. The contributors explore the implications for younger people with dementia and their families at personal, planning and service-development levels. Arguing that information from the wide range of existing practice and clinical knowledge can be shared and built upon, the contributors call for a collaborative, interprofessional and multi-disciplinary approach to all stages of the provision of services.

RELATED TOPICS: Health & Well-Being
This volume of writing is extremely timely and benefits from the substantial dementia care practice, research and service evaluation experience of the editors, Sylvia Cox and John Keady. Recommended reading for service planners everywhere. – Signpost Reviews
This is the first book to address the subject in its own right. The contributors explore the implications for younger people and their families at personal, planning and service development levels. The contents are very necessary reading for all those concerned in dementia care and raise important interprofessional issues…The book is very well referenced, giving many suggestions for further reading on particular subjects. The style is clear and readable throughout. In my own opinion the book is essential reading for all concerned with providing care for younger people with dementia. – Journal of Interprofessional Care
This book is not one to be just read. Because of its academic nature it is to be studied, discussed with colleagues and used as a reference tool. It embraces medical, sociological and psychological approaches in addressing and understanding the particular needs of persons with younger onset dementia. "Younger" is defined as being anyone under the age of 65, and particularly those in their third, fourth, fifth and sixth decade. In addition to scholarly essays, there are also many accounts from people with dementia as well as their caregivers…What we especially like about this book is the collaborative effort of various disciplines from several countries. As it is not limited to national boundaries, it gives a window into writings and practices from around the world…The result is an impressive and informative book from which all of us working in the Alzeimer's community can benefit. Sylvia Cox and John Keady are to be commended for taking on the task of editing this excellent book…This is a timely book that argues that "information from the wide range of existing practice and clinical knowledge can be shared and built upon; the contributors call for a collaborative, interprofessional and multidisciplinary approach to all stages of the provision of services." This they have accomplished with their contributions to this book. – Early Alzheimer's
One of the joys of book reviewing is that occasionally one is offered a book that gets everything right. Younger People with Dementia is such a book. The subject matter is of increasing concern and this treatment is timely. The book is well produced by a specialist publisher. Its contributors contribute readable English, with a notable absence of jargon. Both editors have written widely on the subject themselves and have chosen and ordered the contributors with great care. An impressive bibliography is also included. – Community Practitioner
Foreword by Professor Mary Marshall, Dementia Services Development Centre. Introduction, Sylvia Cox and John Keady. PART ONE: SETTING THE SCENE. 1. Assessment and Service Responses for Younger People with Dementia, Jane McLennan, Royal Victoria Hospital Edinburgh and the University of Stirling. 2. Epidemiological Issues and Younger People with Dementia, Kirstie Woodburn, Royal Edinburgh Hospital. 3. Needs Assessment: Individual and Strategic Care Planning, Gregor McWalter and Jim Chalmers, Information and Statistics Division, NHS Scotland. 4. Opportunities and Threats: Multi-Agency Perspectives and Person-Centred Planning, Sylvia Cox. PART TWO: SPECIFIC CONSIDERATIONS. 5. HIV and Related Brain Impairment, Steve Jamieson, Bethlem and Maudsley NHS Trust, London. 6. Huntington's Disease, Roseanne Cetnarskyj and Mary Porteous, West General Hospital, Edinburgh. 7. Learning Disability and Dementia, Sally-Ann Cooper, St Mary's Hospital Rockingham Forest NHS Trust. 8. Alcohol-Related Brain Impairment: An Approach to the Problem in Victoria, Australia, Simon Crowe, La Trobe University, Melbourne. PART THREE: DEVELOPING AN INDIVIDUAL UNDERSTANDING. 9. Dark Head Amongst the Grey: Experiencing the Worlds of Younger People with Dementia, John Killick, Westminster Health Care and the University of Stirling. 10. Negotiating Care-Giving and Employment, Dianne Seddon, University of Wales, Bangor. 11. Young Carers: Individual Circumstances and Practice Consideration in Dementia Caregiving, Jane Gilliard, Dementia Care, Bristol. 12. Family Caregiving and Younger People with Dementia: Dynamics, Experiences and Service Expectations, John Keady, University of Wales at Bangor and Mike Nolan, University of Sheffield. 13.Designing for Younger People with Dementia: The Needs of Younger People with Dementia, Gretta Peachment, Homes of Peace, Western Australia. PART FOUR: PRACTICE DEVELOPMENTS. 14. Younger People with Dementia: Psychosocial Interventions for Individuals and their Families, Bob Woods, University of Wales, Bangor. 15. Support Groups for People in the Early Stages of Alzheimer's Disease, Robyn Yale, San Francisco. 16. Training and Younger People with Dementia: A Shared Learning Perspective, Alan Chapman, Dementia Services Development Centre. 17. Changing the Mindset: Developing an Agenda for Change, Sylvia Cox and John Keady. Index.
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