Cara A. Chiaraluce

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Becoming an Expert Caregiver

How Structural Flaws Shape Autism Carework and Community

Rutgers University Press

This book features the voices of 50 primary caregivers of autistic and neurodivergent children who illuminate the process through which lay women become expert caregivers to provide the best care for their children. Expert caregiving captures an intensification of traditional family carework – meeting dependents’ financial, emotional, and physical needs – that transcends the walls of one’s private home and family and challenges the strict boundaries between many worlds: lay and professional, family and work, private and public, medical and social, and individual and society. 

  • Copyright year: 2025
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